6 years old! I can't believe this boy is already 6! He was the best baby I ever had! He was always happy and never cried! He is now still such a good kid! I have my days with him but he is the greatest thing in this family! He never wants anyone to be left out and is friends with everyone (He picks on alot of kids but for some reason all the kids always want to play with Boston) Not a day goes by where I am not thinking about his future and what it can be and what it could be! I pray he lives a long healthy life and that his health will only be better. I found this off a blog and thought I'd share! Most/ALL people don't realize what we go through on a day to day basis and why leaving him with someone is so hard for us unless the completely know how to care for him!
In a world where there seem to be so many new cases of allergies, I am finding that many people I meet indeed do have a child with allergies. Many of these people are passionate about keeping their children safe, and more specifically safe at school. I listen to how class parties shouldn’t have snacks so their kids don’t feel left out, or kids shouldn’t be allowed to celebrate birthday’s with a cupcake but rather a pencil for every kid in the class. But what always stands out to me in these types of conversations is that the parent usually ends each statement with, “because my kid could die.”
We have been living with Type 1 diabetes for over 4 years. I have explained this disease to numerous teachers, classroom aides, Principals, Vice Principals, class mothers, and friends’ mothers. Really, almost too many people to count as I always feel I am on a crusade of educating everyone about Type 1 diabetes. But until very recently I never added the, “because my kid could die,” statement to my conversations. But that is very much the truth.
I don’t want my son’s sugar to plummet while he is sleeping, “because my kid could die.”
I don’t want my son’s sugar to go unchecked and go to high, “because my kid could die.”
I don’t want my son’s sugar to drop so low when he is high up on the jungle gym as he could fall, hit his head, “because my kid could die.”
I am not sure why this statement hadn’t really passed my lips in the four years since diagnosis. Until recently.
Maybe I am taking some lead from the mom’s of kids with allergies, knowing that the world listens a little better when you add in that a mistake may make a child die. Maybe I am tired of living with this disease 24 hours a day 7 days a week and people still aren’t getting how serious this hidden disease really is. Maybe I want people to understand that the reason I wake up at night, sometimes several times a night, over the course of four years is because I do not want my child to die.
Maybe I am just coming to terms with the fact that my child, my heart and soul, my absolute reason for living, could indeed die from this disgusting disease at any given moment.
I make a flippant remark the other day to a friend when we were talking about ‘my’ life. ”You know it’s a good day in our house when everyone wakes up alive.” It came out faster than I could stop it. As my mom used to say, what’s on my lung comes off my tongue, and this was the case. Although what I said was not insulting anyone it did set ME back a few steps.
In my world, yes, there are fights about school and even with the school. Arguments about cleaning up or lack thereof. Dissent when it comes to bed time. But all in all, it’s a good day in our house when everyone wakes up alive.
I know this isn't a normal birthday post but his little birthday party won't be for a few weeks so I will post more then!! I just really wanted to share! I love my son for the person he is and who he will become! As hard as my days get, I wouldn't change it for world! He is very active and loves being on the go! He cant sit still for 10 seconds! He wants to be friends with everyone, even if they don't want to be his friend! he invites everyone he sees to go on a ride in dads truck! He never wants anyone left out!
I have hard days where I think too much about his disease and all I can do is cry and then other days where I am just fine! I always think "I have it hard but someone out there has it harder" It helps me get through the day knowing I have my son at home with me and I can care for him on my own. There are alot of Dr appointments but I would take that over something way worse anyday! This poor guy also suffers from ADHD he can't officially get diagnosed for it but 100% sure he has it. He is slot of work. Most days I struggle I try to focus just on him to help him but with having a baby and another child to care for as well, I have to give them equal attention! he gets left out slot because sometimes he is just too much for some people to handle and most people don't want to have to deal with it but he is happy with the friends he has and they love him to pieces! As much as Boston picks and pokes and annoys them, they love him! We just recently had our good friends move into the ward, I was nervous to have Boston play with them cause I didn't want them to think that he ws just a mean little boy who just causes trouble. I was wrong they love him even when he is a punk! In fact her girls asked to play with him everyday! He loves playing with them too! We are so glad they moved here! Marc and I needed friends to hangout with and Boston is loving every minute of it! I could ramble on and on! I am just so very blessed to have Boston in my life he puts a smile on our faces everyday! love you bud! your getting so big and turning out to be such an amazing son!!! love ya